The Eternal Guest Room

Infertility kinda sucks.

unnecessary drama

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We had a bit of a mini-crisis this morning. Right at shot time, D came into the room and asked if we had more needles because we already went through the ones in the 2-week kit.

When I first got all the meds, I threw everything in the fridge because of the notice on the box that they needed to stay cold. A day or two later, I realized some of them are supposed to stay warm, so I took those out, along with the needles. We have a million needles, but they all seem to be for progresterone. I assumed that we had extra ones in the box. D assumed that some of the needles on the counter could be used for this shot. Cue panic.

I couldn’t believe they hadn’t given us extras for this one when every other one came with a billion extras. How was I supposed to take 3 weeks of shots with a 2 week kit? What was wrong with all these people?

I waited 15 minutes until the clinic opened, but they don’t always turn the answering service off right away and I was getting panicky. So D went to the internets and read that you can buy syringes over the counter. Our clinic is at least 20 minutes away, more at traffic time, and CVS is 5, so we went off to CVS. The girl at the pharmacy did not want to be there and looked at us suspiciously, and said that she could only give us syringes if we’d gotten a prescription filled there. So we headed over to Walgreens, another 8 minutes down the road (all of this was happening at rush hour).

Lupron is supposed to be taken at the same time every day, and we were given a 30-minute window on both sides. Our 30-minute window was up at this time and I was getting worried. We got to Walgreens, explained the situation to the friendly pharmacist, and she got the syringes.

As soon as she held up the bag to show us, it hit me: “Oh my god, that’s what’s in the refrigerator” I said. For some reason, those needles didn’t come out with the rest. Whenever I saw them I wondered why there were baby carrots in our fridge (they have orange caps and at a glance, in the context of being in the fridge, my brain made them baby carrots). Then I would realize they were syringes and completely forget about them. I have no idea why I never took them out. Just wasn’t thinking.

I was so embarrassed. I felt like such an idiot. Luckily the pharmacist was nice about the whole thing and D wasn’t annoyed with me at all (or if he was, he didn’t show it). For some reason, the panic took over and I just didn’t think the whole thing through.

So after a stressful, panicky 45 minutes, we got home, took the syringes out of the fridge, and did the shot. I feel really dumb about the whole ordeal.

At least now I know we have 10 more needles and I’ll be really careful about running out in the future.

I start stims tomorrow, stim for 4 days, and then go in on Tuesday morning to see how my follicles are growing. I’m anxious to get to the monitoring part. This part is boring. Now that we’re here let’s get this show on the road.

needles and turkeys

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We’re moving right along. I take my last birth control pill tomorrow (yaaaaaayyyy). In the meantime we do a lupr.on shot every morning at 7:15. The shots themselves have been worse than I expected; 2 days D couldn’t get the needle to pierce my skin on the first attempt, and it turns out being poked with a needle is much more painful that being pierced with one. Ow. Yesterday I had a weird little bump/reaction. Today it bled. So that hasn’t been super fun. D told me that it’s harder than when we did injections for the IUI because I’m a little thinner now. I don’t know if that’s the reason or if my body is just putting up a fight and trying to be even more difficult than usual. Doing them in the morning has been pretty weird, too; either I’m half-asleep (on weekends and the days I work from home) or in the process of rushing to leave (on the days I go to my away-from-home job).

Emotionally, I feel better. My moods seem to have stabilized quite a bit. I haven’t felt like killing anyone or burst into tears at nothing. So that’s progress.

Physically, my one side effect is headaches, and those suck. I have a near-constant headache. Sometimes it’s a dull pain that’s barely there, sometimes a medium throbbing, and other times like a migraine complete with nausea and stabbing pains throughout my entire head. So that’s not so awesome.

I’ve been going to acupuncture for 2 weeks. There have been actual studies that prove it improves success rates for IVF, so even though it’s an extra cost we feel that it’s worth it. This is our one attempt for the foreseeable future, so we’re putting everything we have into it. Unlike the last time I did acupuncture (a year ago with IUIs), I’ve been enjoying it. I’m pretty sure it’s 95% because in that time she has gotten heated beds. So I get nice and cozy and relaxed. She also puts a heater right over my stomach or back and covers my feet and shoulders with thick blankets. So it’s a nice little warm cocoonish 20 minutes instead of pure agony like last time. Amazing what a change in temperature can do. I also think I’ve just gotten used to the needles; and maybe I’m better at being still. Who knows.

I finally got around to taking a photo of my meds to show you. I actually have a lot less than most people seem to. Partly because my doctor orders the minimum and then I get refills later if I need them. Hopefully not, as they are expensive and I’d really rather not need any more. It also just varies based on protocol, age, situations, etc.

IMG_4186

And yes, I did use my photoshop skills to remove my name, address, & phone number before posting these to the internets.

See all those needles on the left side??? Holy crap. I’m really hoping (and thinking) that they sent me way too many. Both pharmacies that I ordered from sent me a whole bunch, so I’m thinking (and again, hoping) that they both sent me a full set. And each more than what I actually will need. Because yikes.

Most of them live in the refrigerator, so I get to see them every time I need something from there. I have a lifetime supply of ice packs at this point, so if you’re in need of ice packs, please, let me know.

What else is in my refrigerator, you ask? Well let me show you them:

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The holidays…that’s a completely different post. For now I leave you with these guys. I know you all want one.

it’s the end of the world as we know it

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I gave myself a shot this morning.

I was tricked.

We went in for an appointment and were instructed to bring the Lu.pron. First we had a sonogram and everything looked fine. Then we went into a room and the nurse came in and started giving instructions for the Lupr.on shots. She said we were going to do the first one then & there, and then tomorrow we’d start doing them on a daily schedule. She asked if I wanted to stand or sit, and first I stood up, but as she stepped toward me I realized I was backing away slowly, so I sat down. She had me rub alcohol on one spot on my stomach. Then she told me to pinch the skin. Then she told me to hold the needle.

I looked at D in terror. He later said that he’d never seen me look so terrified. I said “but he’s going to do them” and the nurse said “you need to be able to do it.” And as I started to panic and (geez, embarrassing…) cry, she kept saying I had to show her that I could do it. She basically forced me to hold the needle and said “it’s already in! You just need to push down.” So with my eyes shut and through tears I found the end of the stupid syringe and pushed the stuff in and then took the needle out of my stomach.

It was an out of body experience for sure.

She then said “wow, I’ve never had anyone do it with their eyes closed before!”

So now I know that i can give myself a shot. Well, at least if I can do it without looking. Which might not be a great idea.

But I never want to do it again.

A little advance notice would have been nice, but I guess I don’t really get a vote in any of this.

For the educational portion of this post: The Lup.ron suppresses your ovaries and prevents you from ovulating. This is important because you can’t ovulate until they’re ready to snatch those eggs out. Otherwise the whole thing would be a waste. I hear horrible things about it – hot flashes, killer headaches, extreme bitchiness – so I’m a little apprehensive, especially after the BCPs didn’t agree with me. We have to do the shot every morning at the same time, so for the next 2 weeks I have to be awake even on my “sleep-in” days early enough to do it at 7:15am. I told D that might actually be better – to do them while I’m half-asleep.

My last BCP is on Thursday, and then a few days after that we start the shots to rev everything up. I’ll do my best to keep this updated with the progress; life has been super busy but I’m hoping that starts to slow down a little.

As we pulled out of the clinic parking lot, that “End of the World as we Know it” song came on the radio. I started laughing and said it was apropos in some ways. Because this kind of is the end of the world as we know it – either we’ll have a baby and the world will change completely, or this will fail and our lives with change completely in some other way. Either way, it’s a turning point.

I’m not sure if I’m ready to say “And I feel fine,” but I am ready for everything to change.

And I still can’t believe this is actually happening.

the beginning

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I’ve been waiting to post until I took a picture of my meds, but I just can’t seem to get myself to do that so I’ll go ahead and write something in the meantime.

It’s kind of weird right now. Everything is very surreal.

I’m ready to be done with the birth control pills. Ever since I started taking them I’ve been more emotional and much more irritated. Last week I snapped at my supervisor and nearly lost my temper completely with her – which would have been very bad. They give me mood swings and I’ve had a few complete breakdowns, some of which were very embarrassing. And I learned the hard way that the pills and alcohol are a bad combination, at least during my first week of taking them; so much for enjoying some wine at a wedding. And the side effects are getting worse instead of better as I take them longer. I’m worried about how the rest of the meds are going to affect me – I’ve taken one of them without much problem, but it was a lot less. It’s only the beginning of the hormones and so far it is not going well; I’m scared of the next 2 months. Right now I feel like a crazy person.

I’m actually sort of having a hard time as IVF gets closer. Well, now that it’s here. I was excited and looking forward to it for so long but now that it’s here, I don’t want it to be. I’m not sure why. Maybe because for months I thought (or hoped) we wouldn’t really need it. Maybe it has something to do with spending time around children that came with no problems. Maybe it’s all the shots in my fridge and needles on my kitchen counter. Maybe it’s just too real.

I wish I was happy and excited and hopeful, but I just feel like skipping the whole thing and giving up entirely. It’s so dumb. And maybe it’s a defense mechanism. I don’t know.

But I feel crappy about the whole thing. I feel like a whiny child: I don’t want to do it, why can’t I be like everybody else? I annoy myself completely.

I have needles in my purse. Every time I see them my stomach turns over. I mean to take them out but I always forget when I’m at home. Now that it’s here, I’m terrified of the shots. There are so many.

I know it’ll be fine. Millions of women have done this and survived. I remind myself that the shots are temporary; lots of people have to take shots their entire lives just to stay alive. I can suck it up for 2 months.

I’m hoping that these feelings don’t last; I’m hoping that I start to get excited and hopeful and do all that positive thinking business. Right now though, it just isn’t happening.

I think I’ll blame the pills for that too. That’s fair, right?

it is on

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You know what sucks? Not being allowed to pee.

You know what really sucks? Finally being allowed to pee, but only enough to fill a tiny cup, and then having to stop and hold the rest.

And you know what else really sucks? Having one person push down on your full bladder while a doctor pokes around inside your uterus.

This was my day.

After following the instructions to drink exactly 32 ounces of water exactly one hour before our mock transfer appointment was scheduled, we were called from the waiting room 15 minutes late. Then the nurse said “Okay, we’re going to do your medication training first.” And after seeing a look of panic in my face, she allowed me to pee – a tiny bit.

Then we did our medication training. She showed us how to do 2  kinds of the shots (we’ve already done the other 2 kinds), including the biggest needles I’ve ever had the misfortune of seeing. After asking me “are you going to pass out on me?” she gave us a handful of slightly smaller needles, and I felt immensely relieved that I’ve lost 9 pounds and qualified to be small enough to get the “Small” needles. 1.5 inches instead of 2.

Yay.

After a crapload of instructions, we got to go back to the sonogram room. I laid down and the sono lady put blue gel on my stomach and pushed a little and immediately said “Wow – you need to go fill another cup” and so I got to go pee a tiny bit more into another tiny cup, then return to the room with a still uncomfortably-full bladder.

It was weirdly kind of fun to finally get the kind of sonogram with the blue gel and the outside sonogram thingy (you know, the kind that pregnant ladies actually get to enjoy)  - instead of the big freaking wand that goes up inside. But in its place was the lovely speculum and catheter combo, so that was kind of short-lived.

So the doctor measured my uterus while the sono lady moved the thingy around, and together they made me super uncomoforbale for several minutes while I stared at the ceiling and tried not to A. Pee on the doctor and B. Clench every muscle in my body and C. Stop breathing.

And, as these things do, it all eventually ended. I guess everything was fine. Measured and planned, or whatever they do. It was a quick process, after all the full-bladder pee-holding.

When we left the room I started to wander down the hallway and D said “don’t you need to go to the bathroom?” and I said “oh yeah” and got to pee for the 3rd time. I’d gotten so used to my uncomfortable state that I’d forgotten what it felt like to not have to pee in a serious way.

Then we checked out and found out that insurance hasn’t paid for a December 2010 visit. Commence eye rolling. Luckily the financial lady at our office actually seems to like me and finally believes me when I say that insurance should cover stuff (these things took a long time to work out) so she didn’t make us pay more than our co-pays. And we got new pricing sheets and found out that the pricing we got back in January is still valid. Yay! I was worried that the price shot up in the last 10 months.

On the way home we filled my prescription for birth control pills. I start tonight because my cycle already started – four days early.

Because that’s how I roll – surprises at every turn.

IVF is on.

getting ready

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Time is really flying by. IVF is almost here.

I talked to the first pharmacy I’m ordering drugs from today. We’re using two different pharmacies because one has better prices on gon.al f & the trigger shot, and the other has better prices on the rest. In the end we’re saving a whopping $45. It’s easy to say “why bother, it’s just $45 out of at least $2000,” but in the end, forty-five dollars is forty-five dollars. I always heave a dejected sigh when they ask “do you have insurance or are you paying out of pocket?” I’m going to call the other pharmacy tomorrow to get the rest ordered (I’ve been waiting for the credit card statement to roll over).

So step #1 will taken care of: Order meds.

Step #2 is next Monday: Mock transfer and medication training. The mock transfer is basically poking around in my uterus to measure it and decide where to place the embryos. It doesn’t sound too bad on the surface, but here’s the fun part: I have to drink 32 ounces of fluid one hour before the appointment and don’t get to go to the bathroom until AFTER the mock transfer. So they stick a catheter up there and poke around while you have a full bladder.

Oh lord, I hope I’m not the one to pee on the doctor…

Medication training is just what it sounds like: Learning about the medications. We had to schedule it for a time when D could come, since he’ll be the one administering all the shots. After all was said and done, we ended up rescheduling the appointment 3 different times. Hopefully it’s set now.

When I go in for that, I get my prescription for birth control pills.

Yes, it’s true. The protocol I’m doing (which is the most common) starts with a couple of weeks of birth control pills. This way they can shut everything down before starting it all up again. After a few weeks of those, we start the shots.

I’ll get into more of those specifics in a later post. For now I just wanted to let everyone know where we are, because people keep asking, because I apparently am super vague and uninformative when I post here.

I think at this point, I’m just really shocked that we’re here. Even after 4 1/2 years, it doesn’t feel like we could ever really be at this point. But here we are, counting down the days, really doing it. It’s so much different than IUIs – those feel like a lifetime ago. The whole thing is very surreal.

scared

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The reality that I will be doing IVF hit me like a ton of bricks tonight.

It’s been so easy over the years to say “I’m going to do IVF” but to actually realize it’s about to happen is another thing entirely.

I feel pathetic, overwhelming self-pity. Why do I have to go through this? Why can’t I be like everyone else? They all have it so easy – why do I have to spend a fortune and take daily shots and get invasive doctor visits on a near-daily basis, when they get it all for free? All for nothing?

It’s easy to say “Yay I’m excited! IVF! We finally have a chance!”

But it’s another to face it.

I’m scared.

Lately everyone else’s IVF cycles seem to be failing.

Why would I be any different?

What if it’s all for nothing?

The future is so cloudy. I have no idea what it holds.

Right now, I’m just scared.

visiting the newest

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I spent last weekend in Seattle visiting my little sister and her new baby. I didn’t drop or break him, so I consider the visit a success. In seriousness though, the time was mostly fine. I even enjoyed it for the most part. I originally figured I’d go pretty soon after he was born, but my sister wanted me to wait awhile so I wouldn’t be there in the midst of insanity (and 8 million other family members) and so we could have some time together (we’re close but don’t see each other a lot because of the distance). So he was a month old when I got there, and it turned out to be a good plan because we did get some sister time in. My sister has been incredibly patient and understanding throughout everything, and it made all the difference in the world.

I held him a lot. I found it to be a lot like holding my cats – a small, warm, soft little thing that makes funny noises when they sleep. Comforting, for whatever reason. I enjoy my sisters’ children when other people aren’t around – which is hard to explain, but there’s something about having other people oohing and ahhing and making a fuss that just stabs me in the heart. I can’t explain it. At one point some of her friends came over and were gushing and going on an on and I just had to get out of the house.

Spending one evening at the grandparents’ house also did not go well for me (not my parents, the other side). Something about being around the grandparents is the worst; all those feelings come rushing back that I’ve worked so hard at getting under control – those feelings of inferiority and defectiveness and isolation. It should be me producing grandchildren and bringing my kids to see their grandparents, and I’m still just the barren aunt with nothing to do but watch everyone else enjoying the expanding family. It hurts.

One morning, my sister was sleeping and her husband went out to walk the dog. He asked me to bring the baby to my sister if he started going crazy, and I said sure. After awhile he started making noises, and being the paranoid and clueless infertile that I am, I had no idea if that was a bad thing or ok (although I was pretty sure it didn’t fall into the “going crazy” category). So I went in to the nursery and picked him up and held him and suddenly I had tears down my face. And I thought “I want this so badly.” And my heart hurt. And I cried.

I have built up defenses and even shut down my heart to some extent, because I have to get on with my life. But I know it’s still down there.

At the end of the weekend I was sad to say good-bye. I know that the next time I see him, it will be surrounded by family, and it will be hard. I’m glad I had that time, with just the 2 of us, and with just my sister. It was a good visit and I’m glad I went. Sometimes the hardest things in life turn out to be the best things you can do, and this was one of them.

something crazy

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About 2 years ago, when I was seeing a therapist, she urged me to attend a support group. I was very hesitant and put it off for a few months. I’m not good with strangers. I don’t like meeting new people. I’m painfully shy. I don’t like groups. The idea of walking into a restaurant, meeting a bunch of new people, and having to talk to them was my idea of pure torture. But she kept urging me, and I finally decided I would go.

I remember the first meeting vividly. I was terrified of walking into that restaurant. And then when I met everyone and the meeting got started and I learned that we had to go around the table and tell our “stories,” I wanted to run out and never come back.

But getting up and leaving in front of everyone would have been even more terrifying. Plus, I had already ordered dinner.

So I stayed. And it was ok. I was extremely nervous talking in front of everyone, but I got through it. And I came back.

I’ve been going to the group for over a year and a half. After the first few months, the leader decided to step down. Another girl started to lead, and after a few months, she got pregnant and adopted a baby, and she left. Then someone else took over, and eventually got pregnant, and had to leave (the rule for the group is that you can stay through your first trimester because it’s such an uncertain time, and then you have to leave and graduate to the “success” group).

The group has grown from 5 active members to about 30. But this time, no one wanted to lead. Honestly, I thought about not going any more. It was so hard to continually watch people to come to the group, start to get to know them, and then have them get pregnant and move on without me. Especially when we weren’t pursuing any sort of treatment for such a long time. Toward the end, the only reason I went was to see the people who I had become friends with.

But I didn’t want the group to die. It’s been too much a part of my life and has made such a huge difference. And I’ve made friends, and I would miss them.

So I volunteered.

Anyone who knows me in “real life” knows that I am not a leader of any kind. Like I said above: I am painfully shy. Groups terrify me. Talking in front of a group is the thing in the world I hate and dread most.

Plus, I can barely get through a regular day as it is – my life is stressful and very, very busy. I can barely keep up with myself, and so I struggle – how can I keep up with 30 people?

So I was hesitant to lead the group, to say the least.

But here I am. I’ve been the official leader since the beginning of the month, and I’m starting to get the hang of keeping up with everyone and commenting on our group’s secret Facebook page on a regular basis. But tonight is the first time I host the actual support group – you know, get up in front of a bunch of people (some, strangers) and talk. Loudly enough for everyone to hear and long enough to say what needs to be said.

I figure this will either be a disaster, or maybe I’ll gain some sort of confidence in the end.

Either way, this is what I signed up for. Me – leading a group. Can you imagine? I still can’t.

Life is so unpredicatble.

getting closer

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Our IVF consult went well. We love our doctor. I’m pretty sure we held up the entire waiting room while he patiently answered all of our questions and went over all the dates so I could write them on my calendar, but, as D said, “oh well; it’s our time.”

We’re all up to date on all of our tests, so the next step is: Start IVF.

I set up an appointment for a mock transfer and medication teaching session, and planned to start the process around October 1.

Then I came home and looked closer at the calendar and realized that starting then would mean doing shots while shooting a wedding, and worse, put egg retrieval dangerously close to my cousin’s wedding in Austin at the end of the month.

So…we wait…one more month.

It’s ok though. We specifically decided to start in October in case something came up that pushed it back another month, so as long as nothing goes wrong, we’ll still be on schedule. Hopefully nothing else comes up. Hope hope hope.

I’ve decided to update throughout the entire process. I know that’ll make it harder on some levels, being so open, but my hope is that it will give people a greater understanding of what IVF actually is and entails. I know that a lot of people read this blog who know it all, but there are also a lot of people I know in real-life that don’t have the first clue. So I’m hoping this is educational.

And of course I’m hoping that it makes me feel a little less alone throughout the process.